We (Sethu and Helen) would like to tell you a little bit more about this exciting venture that is Love, This Skin.
Despite coming from different races and backgrounds, we have been drawn
together by our common experiences as people living with albinism.
Although we are both successful independent women, in spite of visual
disability caused by albinism, some of our shared experiences have been
We envisage a different future for people with albinism, one free of fear, exclusion and discrimination, but more importantly, one of self love and self acceptance despite how the world treats us, and where we claim and take ownership of our possibilities.
We want this to be a space where people with albinism can find strength from each other, where we share our own personal survival kits and stories of triumph.
In order to do this, we need to provide information and support to people with albinism, their families, the medical community and educators who work with people with albinism.
We hope to partner with all organisations, schools, institutions and individuals who share this vision of a better future for those with albinism. We hope you will join us!